The Genetics Clinic of the Future project aimed to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all.
Clinical geneticists, genomics researchers, bioinformaticians, social scientists, ethicists and patient representatives worked closely together to develop five fundamental elements of the genetics clinic of the future: data sharing and control, informed consent, patient and citizen involvement and the role of genome data within and beyond the clinic. The different disciplines did not work in parallel, as is often the case, but were collectively involved from the problem definition to the design of solutions.
We developed tools for effective, patient-driven and sustainable care in the genetics clinic of the future.
We called them stepping stones – but you could see them as pilot projects, simulation games, discussion platforms.
Moreover, we performed whole-genome sequencing on ourselves to experience what having your own genome data at hand really means.
Would you like to know more about the work we did? Take a look at our YouTube channel.
